I know a handful of people of Lupus, maybe slightly more. It was easy for me to think about talking to someone with Lupus who was not emotionally connected to me, so that narrowed it down to 2 people. A Friend that I have known since Jr. High and someone who just happens to be my Brothers babys Mama. My Jr. High Friend has lived with Lupus for about 16 years, and I believe Mama was diagnosed last year.
It felt good that I could speak to someone about what I was going through, and that they understood. I got a lot of advice and suggestions, but best of all I got hope.
A common thing I heard and read was that for severe pain Lupus patients are put on Prednisone. I remembered that I had some left over from a prescription I received when I had a polyp. I took one last night. Today I am feeling so normal, well more normal then I have in the last month. Except for some pain in my wrists, hands and fingers. I could finally stretch out my arms, I could reach above my head, without any stiffening. Boy, it feels good. However, I have only a limited supply, I will take it one more time tonight and then see how I do without it on the 3rd day. I'm not trying to play doctor, I just needed some relief until I can get to one. Without insurance, its hard to see a Rheumatoid Specialist.
I had to remind myself, that even though I felt good, I still was positive, and even though the pain went away, the Lupus didn't.
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